World Diabetes Foundation (WDF)

Returning for 2020: Take the WDF Pledge!

The World Diabetes Foundation and Novo Nordisk are pleased to announce the return of the WDF Pledge for 2020. Building off the EASD community’s support for the WDF Challenge in 2019, the WDF and Novo Nordisk have partnered together again in 2020 to support children and youth with type 1 diabetes in Kyrgyzstan. Each 5K@EASD Virtual Challenge participant will be able to raise 15 DKK for the World Diabetes Foundation Kyrgyzstan Project 2020. Novo Nordisk will donate on behalf of the first 10,000 registrants and finishers

Pledge to run/walk the 5K and support children with diabetes in Kyrgyzstan.

Join us in our mission of defeating diabetes. All you need to do is participate in the 2020 5K@EASD Virtual Challenge. Every small step taken by you during this run/walk will drive us in making a bigger change.

Kyrgyzstan has made strides in treating type 1 diabetes in recent years. Yet children and youth with type 1 diabetes in this central Asian country still face barriers ranging from stigma to interruptions in essential supplies. More information can be found here.




Since 2014, the 5K@EASD community has supported World Diabetes Foundation projects and raised over €60,000 for the WDF Projects in Mali (2014), Peru (2015), Myanmar (2016), Rwanda (2017), Kenya (2018) and Jordan (2019).


For the latest updates on WDF, select a project below.

World Diabetes Foundation Kyrgyzstan Project 2020

WDF Kyrgyzstan Project 2020

WDF’s 2020 fundraiser will improve health outcomes for children and youth with type 1 diabetes in the country.

Objective:

Kyrgyzstan has made strides in treating type 1 diabetes in recent years. Yet children and youth with type 1 diabetes in this central Asian country still face barriers ranging from stigma to interruptions in essential supplies. To improve their health outcomes, WDF’s 2020 fundraiser project will address four key aspects of their care:

  1. Self-management
  2. Improved care
  3. Supportive school environments
  4. Advocacy
The project will target two of Kyrgyzstan’s eight regions and be managed by Childhood without Diabetes. It will take place over 24 months (2020-22).

Its targets are:

  • Improved health outcomes for children and youth with type 1 diabetes
  • At least 60 children and youth in selected districts increase diabetes self-management skills
  • At least 60 family members increase diabetes knowledge and skills
  • At least 20 children and youth attend Summer DiaCamp
  • Routine monitoring of T1DM improved and app-based communication between HCPs and families enabled
  • At least 12 school staff trained, and medical cabinets stocked with relevant supplies
  • Public and government sensitised to rights and needs of young people with diabetes via training of 20 teens as agents of change and media coverage about project activities
For more information on the World Diabetes Foundation Kyrgyzstan Project 2020, please click here.

Jordan Project 2019
Jordan Project 2019

WDF has worked with the UN Relief Works Agency for Palestine Refugees in the Near East (UNRWA) since 2002 to improve diabetes prevention and care in the agency’s health centres across the region.

WDF’s 2019 fundraiser project, Prevention and Management of Diabetic Foot for Refugees with Diabetes, will build on the learnings from this long-term partnership, with a special focus on preventing diabetic foot ulcers and, ultimately, amputations among Palestine refugees in Jordan through education, empowerment and capacity building of health staff.

“The burden of diabetes is continuously growing: each year we are seeing a 5% increase in patients with diabetes registered in UNRWA clinics, reaching more than 148,000 by the end of 2017,” explains Dr Yousef Shahin, Chief for Disease Prevention & Control at UNRWA and WDF’s partner on the project. “It is essential to ensure that diabetic foot is properly managed ahead of time to prevent the high cost of treating its complications and disabling effects.”

Nearly 17% of registered Palestine refugees worldwide live in 12 recognised UNRWA camps in Jordan. Their diabetes prevalence is higher than those in host countries, Dr Shahin says, noting that the diabetes rate in Jordan is 10.6% for those above 40 years of age, and 12.1% agency–wide.

“UNRWA faces challenges in diabetes care and diabetic foot care - patient self-empowerment and disease management are crucial,” Dr Shahin says. Health staff are largely generalists with heavy workloads, who often lack tools, equipment and time for patient education, he adds.

26 health centres strengthened
WDF’s 2019 fundraiser project will be rolled out at all 26 UNRWA health centres in Jordan. The project builds on learnings from past partnership projects WDF11-614, WDF14-898, WDF16-1406 and WDF10-555, a successful similar foot care project implemented in the West Bank and Gaza.

Its targets are:

  • 90 doctors and 200 nurses trained in diabetic foot care
  • 26 clinics strengthened to provide diabetic foot care, including provision of diagnostic equipment (monofilaments, doppler ultrasound, thermal printers) and basic exercise equipment for physical activity improvement
  • 50,000 educational materials / brochures produced on diabetes foot care
  • 46,200 patients screened for diabetic foot care
  • Related equipment procured and used

The project will take place over 12-18 months (2019-21).

 

Kenya Project 2018 (Updated June 2020)


On the lush green lawn of a colonial-era inn in Embu, Kenya, parents who recently met were sharing some deeply personal memories and fears.

“She was sick, sick, sick - we were moving between health facilities and we couldn't find the cause,” Jemima Mwihaki said.

Line Consolata Waita nodded. “My son was diagnosed when he was only 12 years old. He's my first one and is my heart. I thought – no, not that.”

“My son, he thought that after diagnosis he wouldn’t live 10 years,” Boniface Maina Muriithi said.

Nearby, their children –ranging in age from 5 years old to their early 20s – dribbled footballs, jumped rope, and exercised to the shrill thwwt of a facilitator’s whistle.

They were all participants in the Diabetes Youth Camp that took place from 24-27 January, 2020. Organised by the Kenya Diabetes Management and Information Centre (DMI) and Kenya’s Ministry of Health and supported by the World Diabetes Foundation, it was the latest camp providing Kenyan young people with diabetes and their parents new skills, support and not least hope.

A need to come together

The camps began in 2008, with the support of a WDF fundraiser project. Today, they are a central element of Kenya’s support for children and youth with type 1, with a focus on self-management. Newly diagnosed patients are sent to camp as soon as possible, and if healthcare workers are worried about a child, they may send him or her back to attend again.

Initially, the camps were just for children, says Catherine Karekezi, Medical Director for DMI. In 2015, the concept was expanded to include parents.

“We realised we were teaching children, but the parents were getting left behind. There's really a need for parents to come together and share their challenges. I think for them it was a big relief just to realise that the children can learn how to manage for themselves and they can have fun like any other child as long as they know what to do.”

To encourage this independence, children and parents learn and sleep separately. At the January camp, the advantages of this were clear. In one room, parents listened intently to lessons about diabetes causes, treatment and complications, some with younger children drowsing on their laps. During an insulin lesson they injected themselves with empty syringes to check their technique; during a footcare session they examined each others’ feet.

In another room, the children received a kid-friendly version of the same instruction. Here, the agenda included pre- and post-meal blood sugar measurements, insulin injections and discussions of the results. Regular breaks for song, dance and silliness kept energy levels high.

For some parents and children, camp is the first time they have been apart since diagnosis. One important goal is to show that children with diabetes can become independent and grow up to live fulfilling lives, Ms Karekezi said.

She recalled an incident from the January camp’s first night with a smile:

“The parents of two small girls had been telling me about their concerns about letting their children be independent. And suddenly the girls ran in and said "Mom we've injected ourselves today and it doesn't hurt!”

“The mothers were like, ‘Okay, you can do it? So I no longer have to inject you?’ And the girls said ‘Yeah, everybody here does it for themselves.’

More children are out there

Zachary Ndegwa, a project officer with the Kenyan Ministry of Health’s Division of NCDs, was also in Embu in January, teaching and offering support. The camps are an important part of Kenya’s larger diabetes response, he said.

“We have about a 5000-10000 children with diabetes in Kenya. But our system is currently following only about 2000 or 2500. Meaning that the rest of the children are out there, some of them with severe malnutrition or severely wasted. They die in the wards because nobody knows that these children are lacking insulin.”

The Ministry of Health is supporting health authorities in each of Kenya’s 47 counties to address this. More than 5,000 healthcare professionals have been trained, and a second edition of Kenya’s national diabetes guidelines was distributed in 2019.

The camps are the next part of the equation. After participating in a camp, children and youth show improvements in growth and HbA1c levels, and decreases in hospital admissions, he said.

“These camps have given us a big, big advantage in terms of improving diabetes care.”

Have you changed?

As the three-day camp drew to a close, Boniface shared some news: John had controlled his blood sugar levels all weekend – and was able to reduce his insulin dose as a result.

“He was so excited, proud,” Boniface said, smiling in wonder.

Then the parents gathered for their final agenda item: ‘The Diabetes Journey’. Doris W Macharia, a clinical officer at Embu Hospital, and her 23-year-old daughter Janice Wahome spoke about their emotions when Janice was diagnosed with type 1 – and what they have learned since.

“As a parent, you have these fears – when she’s far from me, she might die – right?” she said. Her audience nodded. “As parents, let us support our child. Talk to them, and watch their sugars, but not too much – they have a life to live.”

“Have you changed? Will you never be the same again?” she asked, waving to encompass the room, the weekend, the camp.

The parents in the room laughed and responded as one – “Yes!”

WDF donors have supported Diabetes Youth Camps in Kenya via fundraisers in 2008, 2015 and 2018. WDF supports Kenya’s National Diabetes/NCD Response Programme via projects WDF09-436 and WDF16-1344

 

Rwanda Project 2017 (Updated December 2018)
Rwanda Project 2017

Esperance Habinshuti is a 26-year old Kigali resident with big brown eyes and a slow, knowing smile. She also has type 1 diabetes, and spends much of her free time teaching others about the disease and how to manage it.

“When Esperence talks, people say, ‘When you speak about your disease, it almost sounds like fun,” says Crispin Gishoma, executive director of the Rwanda Diabetes Association (RDA)

Ms Habinshuti sends him an ironic smile. Having type 1 diabetes in Rwanda is definitely not fun, and they both know it. Managing the disease is a non-stop challenge, and the irregular insulin supplies, lack of understanding and stigma don’t help. But Mr Gishoma and his colleagues at RDA are working to change this, and dedicated young people like Ms Habinshuti are part of the plan.

The World Diabetes Foundation has been supporting the RDA since 2005. The first and second partnership projects provided badly needed diabetes training for healthcare professionals. This led to a dramatic increase in the number of young people diagnosed with type 1 diabetes – from 3 in 2003 to more than 1500 today. Before 2003, most children and young people suffering from type 1 were most likely to die within a year.  

In 2017, the RDA and WDF launched a fundraiser project, Rwanda diabetes awareness and support, to provide additional help to this fast-growing and vulnerable group.

The project had three elements:

  1. Improve services – The project would allow the RDA to buy Hba1c machines and reagents, improving the quality of the care they provide in their Kigali clinic and in the district hospitals clinics they support.
  2. Run camps – The project would provide funds for two diabetes camps reaching up to 200 young people and their parents. RDA has found camps to be life-changing experiences for young people with type 1, teaching them how to manage the condition, creating lasting friendships, and showing they aren’t alone.
  3. Increase awareness and prevention – The project’s final element was an innovative collaboration with Rwanda’s Girl Guides and youth volunteers to teach students about diabetes prevention and care. These students, in turn, would fan out across the country to raise diabetes awareness among classmates, family and the wider community.

Inspiring campers

From 5-11 August 2018, the RDA held the first of two Diabetes Youth Camps funded by the World Diabetes Foundation. A total of 77 young people attended the camp, each accompanied by one parent (parental support contributes significantly to the health and happiness of youth with type 1, RDA staff say). 

Ms Habinshuti was one of 20 volunteers who lived with the campers and assisted them throughout the week. 

“I wish I had the chance to be a camper when I was diagnosed. I would have learned so much. But I’m happy to work with these young type 1 diabetics, and to inspire them,” she says.

Volunteers are key to the camps’ success, Mr Gishoma says. “Camp staff almost don’t sleep during the week. There are small questions and issues, and also bigger ones – for example, when kids from the countryside first come to camp they sometimes eat too much, and it can be dangerous. Student helpers like Esperance, they bridge the gap between campers and health staff.”

Getting the word out

Ms Habinshuti is part of the awareness and prevention project as well. RDA invited her to form a ‘trio’ with a youth leader and a Girl Guide, which would then receive training in diabetes prevention and care. Her trio – and 13 others like it across the country – are now in the process of visiting selected schools and youth clubs, where they teach other youth about diabetes. 

“The students ask, ‘What can I do to prevent diabetes, must I stop eating and drinking sugar, can traditional medicines help?’” she says. “We have to go back many times, because they have so many questions.”  

After being trained by the trios, school health club members are encouraged to conduct awareness campaigns in their schools and communities. Many have done so, with creativity and enthusiasm, Mr Gishoma says. For example, students have held awareness activities for parents, organised campaigns in public places, met with local authorities, organised community work-outs, and even gone door to door to talk about diabetes. 

While the awareness raising will continue until 2020, it is already making an impact. At least one district hospital has reported a surge in requests for diabetes screening. Several schools have increased the time allotted to physical activities. One teacher recognised the symptoms he had been experiencing and went to a local health centre, where he was diagnosed with type 2 diabetes, the RDA reports.

The confidence that the young people gain from the experience is an added benefit, Mr Gishoma says.

Asked who makes the decisions in her trio, Ms Habinshuti answers in Kinyarwanda. Mr Gishoma grins, and translates: “Normally, the youth leader is in charge. But Esperance’s trio is an exception – in her trio, she’s the leader,” he says.

 

Myanmar Project 2016 (Updated December 2017)

On a warm November day in Yangon, a neatly dressed 49-year-old woman sat stoically behind a wood and glass partition at University Hospital UM1, her legs outstretched in front of her. A nurse swabbed her left foot gently, cleaning the space around her recently amputated second toe. The woman cringed, but made no sound.

“She has pain,” acknowledged Moe Wint Aung, Professor in endocrinology in the Department of Endocrine. “We would like to give her some analgesic spray, but we have a shortage of this good material for pain.”

Yet Professor Aung, her hospital colleagues and the patient, whose name is Ms Daw Aye Aye Than, agreed – Ms Daw Aye Aye Than had been lucky. She was referred to UM1’s diabetes clinic for insulin treatment, where a foot ulcer with gangrene was discovered. In the past, the diabetes clinic staff would have dealt with the ulcer as best they could. But thanks to WDF’s Myanmar fundraiser project, Ms Daw Aye Aye Than was able to visit a new diabetes foot clinic in the hospital, and receive immediate, effective care.

Prof Aung asked the patient a few questions, then turned to her visitors.

“Because she lives far away, she’s staying at the hospital for one or two months,” she said. “With luck, after that she can go back to work.”

Little focus on feet

Diabetes is one of the main health problems in Myanmar, according to the Myanmar Diabetes Association. A national STEPs survey supported by the WDF in 2014 found a diabetes prevalence of 10.5% among Myanmar adults, well above the global diabetes prevalence of 7.3%.

Funds raised by the WDF 2016 are being used for diabetes foot care training, screening and awareness in three university hospitals in Yangon and Mandalay, Myanmar's two largest cities.

“We started talking to WDF about diabetes care in Myanmar because there was no systematic diabetes foot care system in Myanmar,” explained Prof. Ko Ko, General Secretary of Myanmar Society of Endocrinology & Metabolism and Endocrinologist at UM2, WDF’s partner on the project.

People with diabetes receive basic care at the local level, but there has traditionally been little focus on feet, he says. “Because of that, we’ve had a lot of amputations due to diabetes - amputations that can be prevented.”

When Myanmar’s government established three new diabetes clinics in the country’s university hospitals in 2015, Prof Ko Ko saw an opportunity. “Our objective is to establish these three clinics, and then train doctors and nurses across the whole country,” he said. “Our initial aim is to train 450 HCP within 3 years. We’re also planning screening and public awareness about diabetes foot care.”

WDF Programme Manager Hanne Strandgaard was among those who visited UM1 that November day.

“All three clinics are going 100km per hour – systematic, routine diabetes foot care services are being provided,” she said. “A patient registry is in place, which will enable more comprehensive data on foot complications to be collected and disseminated. Informative and visible educational materials have been developed, and other hospitals are looking to copy this approach. This will be a success – we can be very proud of this project and our project partners.”

The tip of the iceberg

Challenges remain: Prof Aung would like more training for her staff, and is working to obtain more medical supplies for the new clinic. Awareness about the dangers of diabetic foot ulcers are still low, Myanmar lacks podiatrists, and there’s a lack of shoemakers producing appropriate footwear for people with diabetes and foot complications, Prof Ko Ko adds.

Still, he and his staff are optimistic – and ambitious.

“We’ll continue to educate HCPs, and teach patients to know their risks," he says. "We hope to reach people living in villages, provide screening in villages, and teach midwives to do screening. This is tip of the iceberg.”

 

Peru Project 2015 (Updated December 2016)

Building on the momentum from 2014, the 5K@EASD community continued the fundraising effort at the Stockholm edition of the 5K@EASD. Through the purchase of runner shirts, participants raised €9,340 to directly benefit the World Diabetes Foundation project “Creating Basic Care Units for Diabetes Care in Peru.” This program aims to raise awareness about diabetes and its prevention, improve diabetes care, and prevent and treat foot complications.

World Diabetes Foundation
WDF's new fundraiser the Peru Project will bring much needed diabetes care in the country
(Images courtesy WDF)

Updated as of December 2016:

Since its launch in 2015, the Peru Project has rolled out eight primary care clinics in Piura and Lima -- twice the orginal target -- where it has trained more than 100 healthcare professionals, screened more than 1000 people and provided counseling and footcare services to nearly 1000 people since its launch in June 2015.

For more information on the Peru Project update, please click here.


Mali Project 2014 (Updated December 2015)

In 2014, participants at the 5K@EASD in Vienna raised €10,809 through the purchase of runner shirts. All proceeds directly benefited the World Diabetes Foundation project “Strengthening the Management of Diabetes in Children in Mali.” This initiative improved access to care for 250 children with Type 1 diabetes in Mali, Africa.

 



About World Diabetes Foundation

The World Diabetes Foundation is an independent trust dedicated to the prevention and treatment of diabetes in the developing world.

From 2002 to 2018, the World Diabetes Foundation has funded 555 partnership projects in 116 countries, focusing on awareness, education and capacity building at the local, regional and global level.

For more information, please visit worlddiabetesfoundation.org.


 

 







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